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Centro di Coordinamento Regionale per le Malattie Rare
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Angiodisplasie
Associazione Italiana Angiodisplasia ed Emangiomi Infantili-ILA
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Angioedema Ereditario
Associazione volontaria per la lotta, lo studio e la terapia dell'Angioedema Ereditario - onlus
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025472671 - 3400640177
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Atassia e Atrofia Muscolare e neurodiversità
Associazione Acaa Charcot Atassia e Atrofia Muscolare e neurodiversità in Sardegna
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348 517 9141
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Charchot-Marie-Tooth
A.I.C.M.T. sezione Sardegna (Associazione Italiana Charchot-Marie-Tooth sezione Sardegna)
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Distrofia Muscolare
UILDM (Unione Italiana Lotta alla Distrofia Muscolare) - sezione di Sassari "Andrea Cao" - ONLUS - Sassari via Pozzomaggiore, 14
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Malattia di Bechet
Associazione Italiana Sindrome e Malattia di Behcet-SIMBA
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Malformazioni di Chiari 1 e Siringomielia
AISMAC - Associazione Italiana Siringomielia e Arnold Chiari
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Neurofibromatosi
A.N.A.N.a.s. Onlus - Associazione Nazionale Aiuto per la Neurofibromatosi, amicizia e solidarietà onlus
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Porpora Trombotica Trombocitopenica – Sindrome di Moschcowitz
Associazione Nazionale Porpora Trombotica Trombocitopenica - Sindrome di Moschcowitz (ANPTT Onlus)
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Sclerodermia ed altre Malattie Rare
As.Ma.Ra Onlus Sclerodermia ed altre Malattie Rare “Elisabetta Giuffrè”
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Sindrome di Beckwith-Wiedemann
AIBWS Associazione Italiana Sindrome di Beckwith-Wiedemann
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Sindrome di klinefelter
Associazione Sindrome di klinefelter Italiana Sicilia - Askis Onlus
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Sindrome di Pallister-Killian
Associazione Italiana Sindrome di Pallister-Killian
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Sindrome di Williams
AISW Associazione Italiana Sindrome di Williams - Onlus
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Sindrome di Wilson
ASSOCIAZIONE NAZIONALE MALATTIA DI WILSON o.n.l.us.
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